The Soul of the Book:

The Story of Diego and His Mother Alma

The Thief of My Memories is more than a personal story; it is a call to awareness about a rare disease that needs visibility and support.

If you want to learn more about this story and support Alma and Diego's fight, you can follow them on Instagram under El Camino de Diego and purchase the book through their platforms.

Alzheimer is not a disease exclusive to the elderly; it can also affect the youngest. Sanfilippo syndrome, a rare neurodegenerative disease, steals the memories and abilities of children, as happened to Diego, a child who slowly lost his ability to communicate, laugh, and sing. His mother, Alma, has used love and courage as her greatest weapons to fight against this monstrous enemy that, day by day, takes away the essence of her son. Her story has become a testament to struggle, sacrifice, and hope.

Through the pages of her book The Thief of My Memories, Alma tenderly and painfully recounts the process of watching Diego lose his personality and abilities. "It was very hard for me to remember my favorite songs; only a few words came out that almost no one understood, but my heart still sang with joy," Alma shares, describing how her son began to lose skills he once enjoyed, like running, jumping, and singing. Despite the pain, Alma has found in her love for Diego and in her strength a reason to keep moving forward. The book, which reflects her experience, aims to raise awareness about this disease that is unknown to many.

If you want to learn more about this story and support Alma and Diego's fight, you can follow them on Instagram under El Camino de Diego and purchase the book through their platforms.

Sanfilippo syndrome, also known as Mucopolysaccharidosis Type II, is a rare disease that affects one in every 70,000 births, and its diagnosis is often incorrect. For years, Alma fought to make doctors understand what was really happening with her son. Despite closed doors and misdiagnoses, she never gave up. Thanks to her perseverance and social media, she was able to connect with professionals who finally provided answers. A mother’s medical manual is filled with love, smiles, patience, and, above all, many sleepless nights. Despite all this, Alma never stopped searching for the best option for her son.

The journey of Alma and Diego has not been easy, but through The Thief of My Memories, Alma has found a way to share her story with the world. The funds raised from the book sales have been crucial in covering the expensive treatments and therapies Diego needs. The hope that one day children with Sanfilippo syndrome may find a cure remains alive in Alma's heart. The Thief of My Memories is more than a personal story; it is a call to awareness about a rare disease that needs visibility and support. "Although it kills me to see him this way, I am willing to do everything for him," Alma says with unwavering determination. Anyone can help by purchasing the book and contributing to the cause.

If you want to learn more about this story and support Alma and Diego’s fight, you can follow them on Instagram under El Camino de Diego and purchase the book through their platforms.